Everything Going Well.
Daughter is making her recovery from her surgery. We spent 2 nights in the hospital, and they released her this morning. What a whirlwind of emotions this whole thing has been. First and foremost she's doing very well. She still has quite a bit of pain, but every day she improves a little more.
She asked the surgeon if he would save her gall bladder for her so she could show her friends, which he found amusing, but he said he could not do that because OSHA does not allow it, but that he would see what he could do about her getting the actual stones that were in her gall bladder, he also agreed to take some pictures of it so she could show her friends.
She's had many gall bladder attacks over the last several months that have been quite painful for her, the doctors explained to us, that when the stones move from the gall bladder into the bile duct it can cause horrible pain for the person, and if they were too large to pass through, then emergency surgery would likely be the only remedy in that case. Despite the awful attacks she's had, she made it to the point we could have the thing removed.
After he finished the surgery the doctor came and told us all was well, and gave us the pictures he took of her gall bladder and the stones, when he showed us the pictures we all gasped. It's hard to imagine the pain those things were causing her. We knew she'd had a tough time of it, and had been anxious for her to have the gall bladder out. After seeing the pictures, I can see why she had such terrible stomach aches.
I asked him how her spleen was, if it was very big. He said, yes, in fact, it was about 5 times enlarged, and that if it had been much bigger they would have had to open her up to remove it. For me it really validated the decision to remove the spleen.
The first night and day after the surgery were really tough on her. She was in a lot of pain with 6 incision sights on her little belly. She didn't want to do any of the things the nurses asked her to do. Being the stress monkey that I am, I had to worry a lot, I really could make a career of worrying, but the second night was much better and I quit worrying so much. She started getting up on her own, and even laughed at me trying to sleep in the stupid stupid stupid chair.
Anyway, all is going well, and we're taking it day by day. I just must post a picture of her gall bladder and the stones, hope that doesn't gross anyone out too bad, but we've all found it quite interesting. Probably won't have much time to post until after new years with all the stuff going on, plus I've got a few things I've just got to get a handle on, like Christmas shopping, since it is in 3 days and I haven't bought not a single gift. Goodness me!
Sunday, December 21, 2008
Monday, December 15, 2008
I'm Afraid
I Can Say It Here.
I know she won't read this, I can say it here. I'm absolutely terrified inside. I've been holding this in for who knows how long now. Our daughter will be having surgery this week. She will be having her gall bladder and spleen removed. I'm trying not to completely freak out. I've been very honest with her about the risks of surgery that anyone faces. I'm not scared of the surgery as much as I am what the rest of her life will be like. Her life without a spleen.
Lots of people live without their spleen, but they don't live like everyone else. They must be ever vigilant about their health, they must pay great attention to any illness they have, because even a dog bite can become a life threatening infection. We can live without our spleens, but that doesn't mean we don't need them.
In my daughter's case, because she has hereditary spherocytosis, her spleen in so many ways is an enemy. It works tirelessly destroying the fragile spherocytes in her blood, which causes her to suffer chronic jaundice, anemia, and another side effect, the development of gall stones. Removing her gall bladder and spleen will almost instantly restore her to normal blood levels, and the jaundice will go away completely. She will for the most part be just like everyone else, her energy will improve, and she will feel much better. The spleen is the only organ which does not handle her abnormal shaped blood cells.
The medical professionals have assured us this is the best remedy, and that she will feel so much better. All of the documentation I've read supports this idea, but none of it makes me feel less afraid for my precious daughter. I understand how important it will be that she seek medical help at the very first sign of an infection, but what about when she's 19 and doesn't think she will ever die, will she take good care of herself? Will I have any say in the matter?
Oh gosh, I'm driving myself mad with what if questions. I will spare you the 50 other of the same type floating around in my head.
From what I understand a person has just as much chance of dying from an auto accident as they do from having their spleen out. There are millions and millions of people who drive every single day and don't die from it, I look at that as the glass half full. Her mortality is not up to me. It's in God's hands, as is everyone else's. I guess all we can do is the best we can. We think we are making a good decision that will benefit her.
We could leave things as they are, but she runs the risk of having to have an emergency surgery if her gall stones were to move into the bile duct, and cause an obstruction. Emergency surgery is so much riskier than a planned one. If we were to leave the spleen, which is already enlarged, then she could have to undergo another surgery at a later time, and they would not be able to do it laprascopically as they plan to do it now, and she would continue to suffer with the anemia, and jaundice as long as her spleen remains.
Well, we didn't ask for this, she certainly doesn't deserve it, but this is life, imperfect and not without risk. We believe we are making the best choice for her. She is excited, and scared too. She's very glad she won't have yellow eyes anymore. I'm not sure she has any idea what it will feel like to not be anemic, since she's been this way her whole life, but she's excited about that too.
She's shed a few tears in the last week when she starts thinking about all the things that are going to happen. She's afraid she will be in pain after the surgery, and we've been very honest about every detail, and the fact that she might feel some pain, but that we would do our best to make sure it's only a little pain.
I've shed quite a few tears myself. I've been in a very strange foggy state of mind. I can't focus, I can't do anything, I feel quite depressed, and my mind is constantly working, yet, I can't remember the simplest things. I've been writing everything down as much as I can because I simply forget one minute to the next. I'm trying not to let her see this. I don't want my motherly worries to make her feel anxious or more scared than she already is, but she knows me so well, I'm sure she may sense things anyway.
I better get to bed. The rest of my life still rattles on around me begging for attention. I finally watered the poor plants tonight, they thrive despite my random watering habits. It's been a very stressful month. Words cannot describe. Good night.
I know she won't read this, I can say it here. I'm absolutely terrified inside. I've been holding this in for who knows how long now. Our daughter will be having surgery this week. She will be having her gall bladder and spleen removed. I'm trying not to completely freak out. I've been very honest with her about the risks of surgery that anyone faces. I'm not scared of the surgery as much as I am what the rest of her life will be like. Her life without a spleen.
Lots of people live without their spleen, but they don't live like everyone else. They must be ever vigilant about their health, they must pay great attention to any illness they have, because even a dog bite can become a life threatening infection. We can live without our spleens, but that doesn't mean we don't need them.
In my daughter's case, because she has hereditary spherocytosis, her spleen in so many ways is an enemy. It works tirelessly destroying the fragile spherocytes in her blood, which causes her to suffer chronic jaundice, anemia, and another side effect, the development of gall stones. Removing her gall bladder and spleen will almost instantly restore her to normal blood levels, and the jaundice will go away completely. She will for the most part be just like everyone else, her energy will improve, and she will feel much better. The spleen is the only organ which does not handle her abnormal shaped blood cells.
The medical professionals have assured us this is the best remedy, and that she will feel so much better. All of the documentation I've read supports this idea, but none of it makes me feel less afraid for my precious daughter. I understand how important it will be that she seek medical help at the very first sign of an infection, but what about when she's 19 and doesn't think she will ever die, will she take good care of herself? Will I have any say in the matter?
Oh gosh, I'm driving myself mad with what if questions. I will spare you the 50 other of the same type floating around in my head.
From what I understand a person has just as much chance of dying from an auto accident as they do from having their spleen out. There are millions and millions of people who drive every single day and don't die from it, I look at that as the glass half full. Her mortality is not up to me. It's in God's hands, as is everyone else's. I guess all we can do is the best we can. We think we are making a good decision that will benefit her.
We could leave things as they are, but she runs the risk of having to have an emergency surgery if her gall stones were to move into the bile duct, and cause an obstruction. Emergency surgery is so much riskier than a planned one. If we were to leave the spleen, which is already enlarged, then she could have to undergo another surgery at a later time, and they would not be able to do it laprascopically as they plan to do it now, and she would continue to suffer with the anemia, and jaundice as long as her spleen remains.
Well, we didn't ask for this, she certainly doesn't deserve it, but this is life, imperfect and not without risk. We believe we are making the best choice for her. She is excited, and scared too. She's very glad she won't have yellow eyes anymore. I'm not sure she has any idea what it will feel like to not be anemic, since she's been this way her whole life, but she's excited about that too.
She's shed a few tears in the last week when she starts thinking about all the things that are going to happen. She's afraid she will be in pain after the surgery, and we've been very honest about every detail, and the fact that she might feel some pain, but that we would do our best to make sure it's only a little pain.
I've shed quite a few tears myself. I've been in a very strange foggy state of mind. I can't focus, I can't do anything, I feel quite depressed, and my mind is constantly working, yet, I can't remember the simplest things. I've been writing everything down as much as I can because I simply forget one minute to the next. I'm trying not to let her see this. I don't want my motherly worries to make her feel anxious or more scared than she already is, but she knows me so well, I'm sure she may sense things anyway.
I better get to bed. The rest of my life still rattles on around me begging for attention. I finally watered the poor plants tonight, they thrive despite my random watering habits. It's been a very stressful month. Words cannot describe. Good night.
Monday, December 01, 2008
I Has a Coffee
And Other Distractions.
The day started without me. I woke up late, was supposed to be up much earlier, frantically woke my daughter up to get ready for school, we warmed up the car enough to get the frost off the windows, and took off. Got to school and no one was there. We sat in the car puzzled as can be, wondering where everyone was. Then, through the miracle of text messaging got a text from daughter's classmate saying, school doesn't start until 10:00 am.
Why? Why? Why? We asked, but the message was not forthcoming. The kid didn't know why. I could not imagine what would make a delay in the starting of Monday, but for some reason school has been delayed. So, I turned the car around, and we headed home, stopping at the nifty Starbucks that has a drive thru on the way.
Now, I has a coffee, and maybe my brain will work better. Well, daughter is getting off easy today, since we live a good 20-30 minute drive from school, I don't plan on going back. Now, normally I would, but I have to take her out early today for a doctor appointment, so it seems silly to make that trip 3 times in one day even if gas is only $1.69/gal right now.
So, I told her she would just have to stay home rather than spend 3 hours at school. I have stuff to do at home today before we head to the doctor, so all that driving, about 3 hours worth, doesn't seem to make sense.
In the mean time, I need to absorb more of this coffee, and take a shower. It's a simple life I lead.
The day started without me. I woke up late, was supposed to be up much earlier, frantically woke my daughter up to get ready for school, we warmed up the car enough to get the frost off the windows, and took off. Got to school and no one was there. We sat in the car puzzled as can be, wondering where everyone was. Then, through the miracle of text messaging got a text from daughter's classmate saying, school doesn't start until 10:00 am.
Why? Why? Why? We asked, but the message was not forthcoming. The kid didn't know why. I could not imagine what would make a delay in the starting of Monday, but for some reason school has been delayed. So, I turned the car around, and we headed home, stopping at the nifty Starbucks that has a drive thru on the way.
Now, I has a coffee, and maybe my brain will work better. Well, daughter is getting off easy today, since we live a good 20-30 minute drive from school, I don't plan on going back. Now, normally I would, but I have to take her out early today for a doctor appointment, so it seems silly to make that trip 3 times in one day even if gas is only $1.69/gal right now.
So, I told her she would just have to stay home rather than spend 3 hours at school. I have stuff to do at home today before we head to the doctor, so all that driving, about 3 hours worth, doesn't seem to make sense.
In the mean time, I need to absorb more of this coffee, and take a shower. It's a simple life I lead.
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